Congressman Nick Langworthy (NY-23) is leading a bipartisan push to support the millions of Americans providing unpaid care to family members with disabilities or chronic conditions. This week, Langworthy introduced H.R. 2560, the Lifespan Respite Care Reauthorization Act, which would extend critical federal funding for caregiver respite services through fiscal year 2029.
The legislation, co-led by Representative Jill Tokuda (D-HI) and backed in the Senate by Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI), aims to provide short-term relief to caregivers through programs that offer them time off from the intense demands of daily care.
“Too often we see family members who are full-time caregivers on top of the other responsibilities of life,” Langworthy said. “While this is selfless and heroic work, it is often financially and emotionally taxing on the entire family.”
Respite care allows caregivers to temporarily step away, reducing mental stress and physical strain. The Lifespan Respite Care Program provides grants to states to improve access to these services, which are especially vital in rural areas where care options are limited.
“Caregivers go above and beyond to provide essential care to loved ones,” said Rep. Tokuda. “This bill helps keep families together, reduces burnout, and strengthens our rural health safety net.”
The measure has garnered support from 35 organizations, including AARP, the Alzheimer’s Association, the Autism Society, and the National Alliance for Caregiving. Advocates say access to respite care is key to preventing caregiver burnout and improving the overall health of both caregivers and those they support.
“Respite is a lifeline,” said Jason Resendez, CEO of the National Alliance for Caregiving. “This legislation is a step toward recognizing the critical role caregivers play in our communities and economy.”
The Alzheimer’s Association noted that more than 11 million Americans currently provide unpaid care for loved ones with Alzheimer’s, contributing an estimated 18.4 billion hours valued at nearly $350 billion.
Supporters of the bill, including the United Spinal Association and Autism Speaks, emphasized the growing need for caregiver support as the U.S. population ages and the number of individuals needing care rises.
“Congress should pass and fund the Lifespan Respite Care Reauthorization Act now,” said Alexandra Bennewith of the United Spinal Association. “This program is essential to keeping caregivers healthy and our support systems strong.”
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